This year marks the 40th anniversary of the Orphan Drug Act, a piece of legislation that re-shaped research and development for rare disease drugs through several incentives such as market exclusivity. What progress has been made since its passage? And what steps can Congress continue to take to ensure the best health outcomes for patients with rare diseases?Â
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The Hill will take a look back into history to shine light on what still can be done to move forward on rare disease drug policy.Â
The health and safety of event guests, speakers, staff and vendors is our top priority. In-person attendees must provide proof of full vaccination at the door.
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We will accept physical CDC vaccination cards; clear, legible photos of the same; or the digital certificates offered by state health departments. The name on your vaccination record must match the name on your photo ID. Any guest unable to provide proof of full vaccination will not be admitted.
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Guests with medical vaccination exemptions must provide proof of either a medically administered or digitally verified self-administered test within 48 hours of the event.
